What makes a new finding in biology circulate widely? An MIT economist knows: Make the original research materials accessible.

What lies untapped beneath the surface of published clinical trial analyses could rock the world of independent review. (About unpublished data)

Advocates and opponents of “open access” for government-financed scientific research are girding for a long battle before Congress, which has little enthusiasm for either extreme.

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Patients might not know it yet, but they actually have the real power, Friend believes. Sage is developing tools to allow patients to be stewards of their own data, whether it's at their doctors' office or in pharma's hands. The Josh Sommerses of the world will one day be able to say, you want me to join your research? Then share your data.

If patients refuse to play with the nonsharers . . . it's a whole new world.

The inability to identify the molecular causes of disease has led to a disappointing rate of development of new medicines. By combining the power of community-based modeling with broad access to large datasets on a platform that promotes reproducible analyses, we can work toward more predictive molecular maps that can deliver better therapeutics.

If you have an implanted medical device that can collect data in your body, who owns that information? There doesn't appear to be a clear answer to the question. Brooke speaks to Hugo Campos, a patient advocate and founder of the ICD User Group, about his unsuccessful attempt to obtain the data collected by his own implanted defibrillator.

Genomics research increasingly depends on access to large pools of individuals’ genetic and health data, but there is mounting dissatisfaction with governance approaches that erect barriers between donors and the biomedical research in which they are participating. Typically, participants have little or no opportunity to track how their data are being used, what discoveries result, and what the new knowledge might mean for them, even when findings are of life and death significance for the participant.

Calls for government mandates for researchers to share not only findings but also data and computational methods.