ruraldreams + open-data   8

How research goes viral - MIT News Office
What makes a new finding in biology circulate widely? An MIT economist knows: Make the original research materials accessible.
open-science  open-data  research  medical-research 
28 days ago by ruraldreams
Data Diving | The Scientist
What lies untapped beneath the surface of published clinical trial analyses could rock the world of independent review. (About unpublished data)
data  research  open-data  open-science  medical-research 
4 weeks ago by ruraldreams
Developing predictive molecular maps of human disease through community-based modeling : Nature Genetics : Nature Publishing Group
The inability to identify the molecular causes of disease has led to a disappointing rate of development of new medicines. By combining the power of community-based modeling with broad access to large datasets on a platform that promotes reproducible analyses, we can work toward more predictive molecular maps that can deliver better therapeutics.
open-science  open-data 
january 2012 by ruraldreams
Who Owns Data From Inside Your Body? - On The Media
If you have an implanted medical device that can collect data in your body, who owns that information? There doesn't appear to be a clear answer to the question. Brooke speaks to Hugo Campos, a patient advocate and founder of the ICD User Group, about his unsuccessful attempt to obtain the data collected by his own implanted defibrillator.
e-patient  open-data  open-science  privacy  research 
january 2012 by ruraldreams
Opinion: Occupy Science? | The Scientist
Genomics research increasingly depends on access to large pools of individuals’ genetic and health data, but there is mounting dissatisfaction with governance approaches that erect barriers between donors and the biomedical research in which they are participating. Typically, participants have little or no opportunity to track how their data are being used, what discoveries result, and what the new knowledge might mean for them, even when findings are of life and death significance for the participant.
occupy  citizen-science  mcmsocnet  medical-research  open-science  open-data  registry  biobank 
january 2012 by ruraldreams
Scientists, Share Secrets or Lose Funding: Stodden and Arbesman - Bloomberg
Calls for government mandates for researchers to share not only findings but also data and computational methods.
open-science  medical-research  open-data 
january 2012 by ruraldreams

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