ruraldreams + occupy 2
Opinion: Occupy Science? | The Scientist
january 2012 by ruraldreams
Genomics research increasingly depends on access to large pools of individuals’ genetic and health data, but there is mounting dissatisfaction with governance approaches that erect barriers between donors and the biomedical research in which they are participating. Typically, participants have little or no opportunity to track how their data are being used, what discoveries result, and what the new knowledge might mean for them, even when findings are of life and death significance for the participant.
occupy
citizen-science
mcmsocnet
medical-research
open-science
open-data
registry
biobank
january 2012 by ruraldreams
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biobank ⊕ citizen-science ⊕ healthcare ⊕ mcmsocnet ⊕ medical-research ⊕ occupy ⊖ open-data ⊕ open-science ⊕ reform ⊕ registry ⊕Copy this bookmark: